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The
Family Advocacy Center, FAC, is a not-for-profit agency located in
Deerfield, New York, which serves individuals with developmental
disabilities and their families.
FAC began over 25years ago as a grass-roots parent advocacy group
and was later incorporated in the State of New York as Parent Advocates
for the Retarded. Later we added "and Developmentally Disabled"
to our name, and in 1994 changed our name to a more politically acceptable,
"Family Advocacy Center." We began with a small group of
parents around a kitchen table bemoaning the lack of services for
children and adults who are mentally retarded and living at home.
We have come a long way starting with a small NY State grant from
the Developmental Disabilities Council to establish an office with
paid staff to advocate for parents and families who need assistance
for their child. Our first goal was to establish a place where parents
could leave their child under the direct supervision of experienced
and caring staff for periods of time so families may respond to family
emergencies, take vacations, spend time with their other children,
or simply "take a break." Our strong advocacy on a County
and State level resulted in the creation of the first free standing,
respite care home known as the Oneida County Respite Care Home, which
was the first of its kind in the Northeast and became a model for
other programs which would be developed several years later.
The focus of FAC, along with the passing of Federal Public Law 94-142,
today known as IDEA, changed to creating better special education
programs for our children. Soon our volunteers were asked to advocate
for other children and thus, the formation of the Family Advocacy
Center.
Today, some 25 years later, FAC has a staff of seven advocates/service
coordinators, an executive director and a secretary who serve Oneida,
Herkimer and Lewis Counties in upstate New York. We provide information
and referral, advocacy, special education advocacy, Medicaid Service
Coordination, trainings and workshops for parents and other professionals
in the area of special education, guardianship, SSI, etc.
Our newsletter, produced 3 times per year, keeps parents and families
informed and up to date on happenings locally and changes in the "systems"
that serve our children and adults. We have become the "experts"
in special education issues and accompany parents to Committee on
Special Education (CSE) meetings arranging, and planning for a lifetime
of supports and services. FAC will assist families from the referral
of a child for special education service right through the Impartial
Hearing.
In order to receive services from FAC, individuals must have a developmental
disability, live in Oneida, Herkimer, or Lewis County, and live at
home with their family.
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